"I may live with CRPS and Fibromyalgia, but IT hasn't taken ME!"
In fact, I have taken IT on and IT is losing the battle with me!
In fact, I have taken IT on and IT is losing the battle with me!
Where to begin..."Don't Let Your ABILITIES be Dimmed by Your dis-Abilities."
I am a wife, daughter, aunty, friend and a mentor to many who loves to smile, enjoys the outdoors and has a huge creative side.
In a split second, 10 years ago working as a nurse and in the job of my dreams, I was injured, crushed my Sural nerve and that was the end of my 25+ year nursing career! Where is your Sural nerve you ask?... right behind your ankle bone. A horrible sound and excruciating pains rushed upon me and within seconds that life as an overachiever, who barely slowed to enjoy all of what God had blessed me with came to a screeching halt! That moment, that minute, that hour, that day and that month changed who I was physically and what I would be able to do from that point on. Almost immediately after my injury I noticed the all too familiar color and temperature changes and 24/7 "fire-poker" type pains that accompany this beast they now call Complex Regional Pain Syndrome/ CRPS, which is a relentless, chronic nerve pain syndrome. There is NO cure and there is NO permanent treatment for CRPS/RSD! It is what IT is and finding a treatment to help you cope and live with your pain is often not available. There are a few that go into remission with certain treatments and for those that that happens to-- they cherish those moments! As we all are uniquely created we ALL react differently to treatments and or procedures and what works for one doesn't mean it Will work for another.
2010 brought on the confirmation of Fibromyalgia which can be described as chronic, widespread pain, fatigue, and Allodynia. Other symptoms may include tingling of the skin, prolonged muscle spasms, weakness in the limbs, nerve pain, functional bowel disturbances, and chronic sleep disturbances. With these two pain syndromes come many necessary changes to be able to function on a daily basis. Some days are harder than others to get out of bed and get moving, yet on other days I can get up and move around quickly.
As the years go on living with this autoimmune disease my immune system has taken a toll and for me that means I now live with other health issues. I am now Gluten-Intolerant but thankfully no Celiac Disease and live with other GI issues brought on by stress from my daily pains. I am holding strong onto my faith and leaning more and more upon my HOPE. My life requires me to take baby steps and to enjoy the ALL of those steps.
One of my goals is to con't to Raise Awareness of what myself and others with this diagnosis go through on a daily basis; thus one of the reasons for making my CRPS/RSD Awareness Jewelry, Lapel Pin and Key Chains. I will donate a portion of the proceeds from my CRPS/RSD Awareness Jewelry, Key Chains and Lapel Pin to research.
I now am able to find joys, smiles and rays of sunshine in the littlest things around me and what a beautiful feeling that is!
"Life Isn’t About How You Survive The Storm, But How You Dance In The Rain.”
"CRPS/Fibromyalgia Pain is Inevitable, Suffering is Optional"
My faith with a positive attitude and living with HOPE is what keeps me moving and grooving in this journey.
and TLCS' Creations
This candle of HOPE continues to burn for a cure
and I will NOT distinguish this until there IS A CURE for ALL of US!!!
