This is what I do to unwind my body, mind and soul despite living with CRPS/RSD.

My jewelry is uniquely designed, starting with a vision and creating until that vision comes alive. I design using color combination's and textures that appeal to the eye. My work includes working with semi-precious beads, gemstones, glass beads, cultured pearls, Swarovski crystals, and silver, copper, bronze or gold accents. All my work is done in a Smoke-Free and Animal-Free environment.

"Don't Let your ABILITIES Be Dimmed By Your dis-Abilities."
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CRPS/RSD; what is it?

November is CRPS/RSD Awareness Month 

  

WHAT IS COMPLEX REGIONAL PAIN SYNDROME? 


Please take a minute and help to educate yourself 




 plus think about this-- 

IMAGINE FOR A MOMENT... 

~~HAVING AN ENDLESS FEELING OF A 

"FIRE-POKER" BEING POKED 

AND CONTINUOUSLY TWISTED INTO YOUR SKIN~~ 


Complex Regional Pain Syndrome = CRPS 
aka Reflex Sympathetic Dystrophy = RSD 
 is a chronic progressive, neurological pain syndrome; that never goes away; 
and can spread to other areas and in some people becomes systemic. 
 It is misunderstood in the medical community, some family members don't understand it 
and some patients are in complete denial but it is REAL! 

This syndrome affects the nerves, muscles, bone, skin and thermo-regulatory system. 
With it comes symptoms such as constant: 
 "fire poker" type burning pain; 
sharp, stabbing, shooting, throbbing and/or constant pain; 
temperature changes in the areas affected; muscle wasting; 
 bone and skin changes including color changes; tissue swelling; 
 excessive sweating or no sweating; 
limited range of motion; extreme sensitivity to touch; 
and lack of or no sleep. 

One may have all these symptoms, a few of these symptoms and/or one or two of these symptoms.

Studies and some doctors are now stating that there are two types of CRPS-- 

  • Type I, develops after a rather simple /minor injury, fall, fracture, surgery or unknown reason and is still referred by some as RSD. 
  • Type II, develops after a nerve or tissue injury and is referred by some as Causalgia. 

Facts regarding CRPS-- 

  • CRPS is a malfunction of part of the nervous system. Nerves misfire, sending constant pain signals to the brain. It develops in response to an event the body regards as traumatic, such as an accident or a medical procedure. This syndrome may follow 5% of all nerve injuries. 
  • Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD), is a chronic pain syndrome characterized by severe and relentless pain that affects between 200,000 and 1.2 million Americans. 
  • Minor injuries, such as a sprain or a fall are frequent causes of CRPS. One characteristic of CRPS is that the pain is more severe than expected for the type of injury that occurred. 
  • Early and accurate diagnosis and appropriate treatment are key to recovery, yet many health care professionals and consumers are unaware of its signs and symptoms. Typically, people with CRPS report seeing an average of five physicians before being accurately diagnosed. 
  • CRPS is two to three times more frequent in females than males. 
  • Treatments include medication, physical therapy, psychological support, sympathetic nerve blocks, and or spinal cord stimulation. 
  • This is not a psychological syndrome, but people may develop psychological problems when physicians, family, friends, and co-workers do not believe their complaints of pain. 
  • The mean age at diagnosis is 42 years. However, we are seeing more injuries among young girls, and children as young as 3 years old can get CRPS. 


2 comments:

Allison Hutnick said...

RSD is a horrific disease, and I wish more people & doctors knew more about it. I am 33 and have had RSD for 11 years. Needless to say, I missed out on my entire 20's. Plus my friends weren't very understanding, and my boyfriend @ the time ended our relationship the week I was diagnosed. Sometimes it's hard to stay positive, but you HAVE to. That's how you make it through life! I have severe insomnia, & it's very hard to function during the day. I'm looking for others with RSD to correspond with. Please email me @ watershee@rocketmail.com. Wishing everyone well & lots of love!!! XOXO~ Alley

AwarenessBelle said...

Alley, it is tough to deal and live with CRPS/RSD on a daily basis. Although with true friendship's, a positive attitude and HOPE; one can carry on with this journey.

Bless U and thanks for sharing with us about your journey.